Message From Hell 2

Now his   stomach has stopped working. The original hospital says they don’t have a bed.


Treatment involves placing a tube through the nose into the stomach or intestine to help relieve abdominal distention and vomiting.

Surgery may be needed to relieve the obstruction if the tube does not relieve the symptoms, or if there are signs of tissue death.

* Everyone who said I can call on them for help, I am taking you up on it. xoxo

* To the imbecile who thanked me for giving them perspective:   Next time you see me coming, you better run. (Bob Dylan)

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23 Responses to Message From Hell 2

  1. RoseWolf says:

    I’m sending all good energies and thoughts your way. Can’t do anything tangible – these intangibles will have to do.

    Kick some (figurative) ass for your boy…

  2. gretchen says:

    do you have a family doc you can call to intervien?
    this is so totally wrong – hell, i’d scream until they fixed things or moved him back to a REAL hospital …
    you must be frustrated out of your mind.

  3. deja pseu says:

    I am so sorry this shit is raining down on your family.

  4. K-Line says:

    Big love vibes from here – and I’m with Gretchen, only my spin is vaguely different – do you have a doctor in your family (second cousin, uncle etc.)? Now’s the time to have him or her advocate knowing the language of the system i.e. kick some serious bad-hospital ass. Really, I’m praying that things are going to improve and fast.

  5. I’m so sorry to hear about this horrific turn! I had to deal with imbecile nurses and doctors last summer when my mother fell and was in hospital. I read through the other post and agree with the good advice, especially making sure you’re getting names. I know I was so distraught that I couldn’t remember to take notes, so started bringing my micro-recorder, repeating each name intimidatingly with a note as to what was said in front of each and every nurse and doctor. Perhaps this idea will help, since I can’t imagine dealing with your child while you are dealing with an injury as well. My heart goes out to you and your family.

  6. arline says:

    I really really wish I could help somehow. Someone qualified will surely come soon.

  7. Alicia says:

    Fucking christ. Is there a family doctor you can call to come up to the hospital where he is and put some sort of authoritative pressure on people?

    This is horrid, Sis. I’m so sorry this is happening to you and your family. If there’s something I can do, let me know.

  8. Suebob says:

    Oh goddamn. I am so sorry to hear this. What a world.

  9. chris says:

    If you have health insurance, someone on that end must be in charge of your son’s case. Most likely a case manager, but different companies use different titles. Find out who this person is, and let him/her know what is happening. If this facility is in their network, they need to know about the level of care being given. It is this person’s job to make sure your son is getting proper medical treatment.

    If you don’t get anywhere with that person, ask to speak to a supervisor. If that doesn’t work, tell them you want to file a formal grievance – expedited.

  10. You need a lawyer now! This is tantamount to attempted murder by medical neglect – he was recovering until he went there!
    Geez I’m on my knees for you.

  11. JK says:

    Sister, I’m of a slightly different opinion though I do not discount everyone’s opinion. I do agree you must be vigilant on behalf of Max but:

    I’m in Arkansas of course but I can (and will) be wherever you need me.

  12. marmalde wombat says:

    hold on hold on. stay strong. i pray so hard for you to my nontheistic God.

  13. sarah.p says:

    I’m wondering whether the threat of publicising this fucking atrocious, criminal level of neglect would force them into caring for him better. Whoever said Name And Shame, I’m inclined to agree.

    Wish there was something we could do other than just be fucking desperate on your behalf.

  14. skye says:

    Down here in the southern hemisphere I don’t think I have any useful practical advice to give, but I am sending you all the love in the world.

  15. TobiLynne says:

    Wish I was closer so I could walk into that place screaming for you (and I WOULD) … what a nightmare, and with your hip to top it off. So sorry, Sister.

  16. HelOnWheels says:

    This is unbelievable! SW, I am so very, very sorry that not only do you have to deal with your son’s health crisis, your own terrible injury but that you have to put up with what is amounting to (from what I’m reading) complete negligence on the part of this hospice. People have given you good advice re. noting names & conversations, getting a lawyer and another doctor involved, going to the media. I can only add that I’m sending you and your family my strength, my positive thoughts & wishes. I’ll also talk to my sisters (a doctor & a hospital administrator) to see what else you should be doing. My heart goes out to you.

  17. Ann says:

    You have my number, my love and my strongest sympathies. Although I am 3K miles away, I will do whatever I can to help you – even if it’s just a sympathetic ear to vent towards at 3am. I know you have no choice and I know there is no other way, but stay strong. Max quite possibly needs you more now than he did when he was an infant.

    When the dust has settled and you both are on the mend (which WILL happen, because there is no other way for this story to play out), take all of the collateral information that I know you are gathering and do whatever it takes and whatever you need to do to take these inept fuckers down.

    I love you so much and am so very, very sorry. Everything good I’ve got that’s worth sending is being sent in your direction.

  18. Deni says:

    Call an ambulance and take him Cedars. They have the best docs there! Just do it. Go nuts on everyone, whatever it takes, do it. Get him to Cedars NOW! Don’t leave him in the convalescent hospital. Get all your family to support you on this. Fuck what the insurance company says; that can be dealt with later. Get him to Cedars. Make them make room.
    I’m sending prayers and have been all along. Let me know what you need!

  19. Sister, you poor thing! I’m SO sorry you’re going through this. I can only echo what everyone else has said: take names, get him to a different hospital, and don’t worry about the insurance. Wish I could do something for you…

  20. sonja says:

    Holy good christ almighty!! I can’t wrap my head around what you are going through!! I’m so sorry. The comments people are making about kicking up the biggest stink, screaming at the top of your lungs to get what you believe your son needs, that he is being denied ring true. I’ve heard many people who have survived a healthcare/hospital debacle talk about how making themselves the biggest pain in the ass to doctors was what worked. Know any members of the press who could do a story? or threaten to do a story? Call a newspaper maybe, or get someone to do that for you? From Canada I send you the biggest hug, and will keep you in my thoughts daily. xoxo Sonja

  21. annemarie says:

    holy mother of jesus.

    this is so wrong.

  22. Aja says:

    I’m so sorry to hear this. I think about it during the day and try and come up with options. This situation seriously sucks.

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